NTCR data release flowchart

This page outlines the process for requesting information held within the Northern Territory Cancer Registry (NTCR).

Data requests can be grouped into 3 broad categories.

Aggregate data

Data is presented in summary or statistical format.

Note: NTCR approval is required for aggregate data.

Is this a request for Northern Territory (NT) data only?

• If Yes contact NTCR (details below) with your:
  • completed aggregate data request form
  • supporting documentation e.g. project proposal.
• If No, contact AIHW (details below):
  • You will first need to develop data specifications with the Australian Institute of Health and Welfare (AIHW).
  • Once specifications are developed, contact NTCR with your AIHW data specification form and supporting documentation e.g. project proposal.

Unit record data

Each row contains details about a single person or case of cancer.

Note: NT chief health officer approval is required for unit record data.

Step 1: Is this a national cancer study?

• If Yes, contact AIHW, develop data specifications with AIHW then go to step 3.
• If No, go to step 2.

Step 2: Does the study involve matching with other NT or South Australia datasets?

• If Yes, contact NTCR, other data custodians or SANT DataLink may need to be included in your request.
• If No, go to step 3.

Step 3: Are you planning to report separately on NT or by Indigenous status?

• If Yes, you may require NT DoH/Menzies ethics approval (even if you have interstate or international ethics approval). Contact NTCR for advice, or email NTCR your:
  1. completed unit record data request form or AIHW data specification form
  2. ethics approval
  3. ethics application
  4. research protocol.
• If No, contact NTCR with your:
  1. completed unit record data request form or AIHW data specification form
  2. ethics approval
  3. ethics application
  4. research protocol.

Personal information about you or someone else (such as a relative)

Note: NT chief health officer approval is required for personal information.

View NT Health freedom of information and submit an application to access information, specifying the request be directed to the NTCR.

Contact

Northern Territory Cancer Registry
NTCancerRegistry.DoH@nt.gov.au
Phone: 08 8985 8078
Northern Territory Cancer Registry

Australian Institute of Health and Welfare
cancer@aihw.gov.au
Australian Cancer database on the Australian Government's Australian Institute of Health and Welfare website

NT Health/Menzies School of Health Research
Ethics on the Menzies School of Health Research website

Return to NTCR data release flowchart.