Rheumatic Heart Disease Program
The NT Rheumatic Heart Disease (RHD) Program aims to prevent acute rheumatic fever (ARF) and reduce the burden of RHD in the NT.
Functions include:
- supporting and providing education and resources to:
- patients, families and the community
- health professionals and educators
- maintaining the NT RHD Register.
ARF and RHD are notifiable diseases in the NT. Read more ARF and RHD for more information on how to notify.
What's new
Updates
| Date added | Title | Link |
|---|---|---|
| 22/09/2025 | Benzathine Benzylpenicillin (Bicillin L-A) Shortage | PDF (264.4 KB) |
| 22/09/2025 | Australia Guidance for Lentocilin | PDF (362.9 KB) |
| 04/09/2025 | Important Tables for new ARF & RHD guidelines | Resource library |
| 02/09/2025 | Australian Guidance for Benzetacil | PDF (280.3 KB) |
Videos and Podcasts
| Date added | Title | Link |
|---|---|---|
| 04/09/2025 | ARF & RHD Explained – Heart Foundation | Short video |
| 02/09/2025 | Ted Talk by Dr Josh Francis: Using our eyes and ears to help young hearts | 30min video |
| 08/04/2025 | Take Heart - Close the Gap – Special edition film | 30min video |
| 08/04/2025 | Desert Docs Podcast: Social Determinants of health | 30min video Spotify podcast |
| 08/04/2025 | Desert Docs Podcast: Rheumatic Heart Disease | 30min video Spotify podcast |
For previously listed videos and podcasts, find them on the resources spreadsheet XLSX (4.1 MB).
Recently released resources
The new resources can be found under the related resource tab:
- Resources for patient, families and community
- Recourses for Health Professionals and Educators
News
| Date added | Title | Link |
|---|---|---|
| 15/08/2025 | This team is trekking to stop a preventable disease that’s hyperendemic in remote Indigenous communities | SBS NITV |
| 06/08/2025 | Trek tackles heart disease cruelling Indigenous lives | NIT |
Research
| Date added | Title | Link |
|---|---|---|
| 13/09/2025 | Acute rheumatic Fever and Rheumatic Heart Disease in Children Aged Less Than 5 Years in the Northern Territory Between 2010 and 2020 | Article |
Resources for patients, family and the community
If you have or know someone with ARF or rheumatic heart disease RHD, helpful resources are available below.
You can also ask your local clinic for more information.
For a broader range of resources, including videos, brochures and posters, get the resources spreadsheet XLSX (4.1 MB).
Videos
Watch the following YouTube video about ARF and RHD in English.
Other languages are also available in:
- Yolngu Matha
- West Kimberley Kriol
- Warlpiri
- Tiwi
- Tetum
- Pitjantjatjara
- Pintupi-Luritja
- Murrinh Patha
- Kunwinjku
- Burarra
- Arrernte
- Anindilyakwa.
You can also watch the following YouTube videos about:
- ending RHD in Australia (end game strategy)
- a patients guide to getting a Bicillin Injection
- why taking penicillin injections is important for rheumatic fever.
Flyer, fact sheet and other documents
- What is ARF and RHD fact sheet - Heart Foundation website
- Boss of my body – injection checklist - RHD Australia website
- Bicillin wallet card - Menzies School of Health Research website
- Take Heart video factsheet PDF (324.3 KB)
Support program
Champions4Change is a national program that brings together First Nations people:
- with ARF and RHD
- who care or support someone who has ARF or RHD
- who live and work in communities with ARF or RHD
The program aims to amplify the voices of people with lived experience, helping others understand what is means to live with these conditions.
Read more about the program on the Heart Foundation website.
Resources for health professionals and educators
If you are a health professional or educator, it is important to know about ARF and RHD, and how to treat it.
Find available resources and training below.
For a broader range of resources, including videos, brochures and posters, get the resources spreadsheet XLSX (4.1 MB).
Guidelines, strategy and calculator
- Australian ARF and RHD guidelines - RHD Menzies website
- Australian guidelines for prevention, diagnosis and management of ARF and RHD (2025) video - watch via Vimeo
- Letter to stakeholders July 2025 - ARF and RHD guidelines PDF (162.0 KB)
- RHD endgame strategy - The Kids Research Institute Australia website
- WHO guideline on the prevention and diagnosis of rheumatic fever and rheumatic heart disease - the WHO website
- ARF diagnosis calculator app - RHD Menzies website
Administering injection and pain minimisation video, guide and poster
- Benzathine penicillin g (BPG) made easy video
- BPG made easy poster - RHD Menzies website
- BPG injection techniques and strategies for minimising pain flyer PDF (626.2 KB)
- Practical guide for administering BPG - RHD Menzies website
- BPG - tips and tricks PDF (821.0 KB)
Reports, fact sheets and flyers
- ARF and RHD in Australia report - Australian Institute of Health and Welfare website
- NT fast facts fact sheet - RHD Menzies website
- ARF and RHD fact sheet PDF (456.8 KB)
- Think ARF flyer - RHD Menzies website
- Tropical Health Orientation Manual (THOM) 2025 - Menzies School of Health research website
Professional development
You can complete online training about ARF and RHD through RHD Menzies.
To find out more and to register, go to the RHD Menzies website.
RHD Register
Anyone living in the NT that has ARF or RHD are placed on the NT RHD Register.
You can access the register if you're involved in their care or coordination.
When accessing the register, you must follow the data governance framework PDF (545.2 KB).
How to access
Follow the relevant instructions below.
NT Government (NTG) employees
You can access the register through NTG clinical systems.
Read the how to access the RHD register fact sheet PDF (217.9 KB).
Non-government employees
To access the register, follow these steps:
Step 1. Fill in the RHD Register access application on the NT Health library services ePublications website.
Step 2. Submit your application by email to your nearest region below.
Once you have been given access, you can access the NT RHD Register using your login details.
More information
You can also go to the following websites that have many resources available:
Contact
NT RHD Control Program - Top End
RHDtopend.health@nt.gov.au
08 8922 8454
NT RHD Control Program - Central Australia
RHDcentral.health@nt.gov.au
08 8951 6909
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